Tuesday, June 30, 2009
Hi It's Tuesday am. I'm doing great today. I had a little sleep last night. maybe 4 hours. But i'm feeling great. Yesterday was a good day for pain and ablility to work. In the morning I had the runs so it took me some time to get going. but after 12:00 I was ok. I drove to santa fe springs and picked up wood at golden state flooring. It was a unfinished white oak 3/4" x 4 inches wide. We will finish the floor after it is installed rather than install a prefinished floor. The reason is that the color the customer wants can only be achieved by finishing the floor after it is installed. Jason and I delivered the wood about 3 pm and then I took Jason to his friends house. I then went to measure the floor at Dale Rehfeld's house in glendora. This is Harry Steinbach (step brother) sister in law Nancy and hubby Dale. I have done work for dale in the past. He is trying to surprise his wife, who is on vacation, with a gift of a remodelI >'m not sure it will be done in time. I came home and Peter Perrson came over for a visit. We chatted about my illness. Today I have an appointment for a bone marrow biopsity at 4 pm at ucla. This will tell me if the chemo has been working and how far alone I am toward remission.
Sunday, June 28, 2009
HI Everyone. It's Sunday June 28th. I'm doing ok today. I have been running to the bathroom often these days. Since I was in the hospital last week i changed my steroid to take it once a week rather than 4 days on and 4 days off. I'm getting used to the new schedule. It does not seem to effect my energy like it did when I was taking it 4 days in a row. I'm doing ok. and feeling great. I worked all week and so I was able to process a few orders. I was in church last sunday on fathers day. and I'm heading that way now. Mike (my brother) is going to be 50 tomorrow. We had a birthday party at my step dad's yesterday for him. I bought him candy for his birthday. Worthers, snickers, orange slices, krackles, etc. I also added some money to his card. He has two small childern that could not stop pawing the candy. I really bought it for the kids anyway. They did enjoy the chochlate. I had monica's headliner in her car changed. It looks so much better.
Jason is going to class for junior lifegaurd training 4 days a week, He seems to be enjoying it.
Have a great day in Jesus.
Tuesday, June 23, 2009
Good morning, It's Tuesday morning. Sleep has been difficult these days. I'm still running a tempature and have the runs. I"m going to work this morning. I have some measures to do and orders to complete. Fathers days was quiet and monday I spent reading a book. Jason received a new lap top computer and he likes it. I wanted my desk back so I could do my work when I needed to. Monica has been a big help while I'v been sick. She is alwasy trying to get me something I need. She dropped off prescriptions and picked up supplies. I real help. Jill is doing ok. She is still trying to adjust to my sickness. It is hard on her. Prayer request - I'm on the steroid for one day a week now rather then 4 days. On Wednesdays I take the steroid. Pray i transition smoothly into the drug without getting sick again.
Sunday, June 21, 2009
It's Fathers Day. Have a great day today. I'm having Lunch at home with the family. Steak, twice baked patatoes, corn, salad, ect. I'm hoping to make it to church today. 4 weeks sick and no church during that time. I'm hopeful to get there today and see some of you. I'm still recovering from the pneomonia. Jill and the kids are doing okay. a little scare last week with my health brought us to the hospital. I"m working some and could use some extra energy to get the jobs done. Have a great day.
Friday, June 19, 2009
Steve is home - yeah!
Steve was released from the hospital last night and is doing well. They ran quite a few tests and ruled out everything except a sinus infection and the slight pneumonia. He is continuing on oral antibiotics for 2 weeks and is following up with an infectious disease specialist in 2 weeks. If he has any more fevers we are supposed to go back to the hospital. Pray that he doesn't get any more!
We are going in to work together for a little bit and we will see how he does. Thanks for all your prayers and hopefully we will enjoy the weekend and Steve (and all the other fathers out there) can have a great father's day just being home with his family. Thank you
God for our fathers! and husbands and sons and daughters and extended family and friends.....
:)
Looking up,
Jill
Wednesday, June 17, 2009
Confusing Day
It is Wednesday night and I (Jill) need to say that Steve appears not to have bilateral pneumonia, according to an infectious disease doctor. He said he did not think it was pneumonia according to the x-rays, there wasn't enough there. He believes there is something else going on, which he said we will figure it out and treat it. In the meantime, he is on anitbiotics and he is doing sooo much better. He felt really good today and no fever. We are not sure how long he will have to be in the hospital, another couple of days at least.
Please pray that they can figure out what is causing infection in his body, and it can be treated. I am always encouraged and more hopeful when he is feeling good (relatively speaking). He is resting comfortably, reading a lot and looking forward to meals :)
Looking up,
Jill
Wednesday earlyy in the morning
Its monica here. We took my dad to the er today around 3 pm. The doctors finally emailed us back and told us to admit my dad in to be tested on to figure out what is causing the high fevers. They ran some tests and took x rays and blood work. It took hours and hours for my parents to finally hear back the results. only to hear that they couldnt find anything except maybe a beginning infection. so they did a catscan and found out that my dad has bilateral pneumonia. Which is pneumonia in both lungs. The doctors said that he will have to stay for at least 3 days to get antibiotics through an IV. So they admitted him into the foothill hospital here in Glendora and he will be there until he is healthy enough to come home. Although the hospital and ER are never fun it is good for my dad to get the medicine and care he needs to get better. Pray for antibiotics to fight off infection and to get my dad healthy so he can come home.
Monday, June 15, 2009
Monday June 15th
Hello everyone this is Monica here. My dad has been very sick for the past 3 weeks. He will be feeling okay for about 3 days then be sick with a fever and joint pain. He has been too weak and tired to come and write on the blog therefore i am writing on it. We don't know why he keeps having high fevers because that means that there is an infection somewhere. My dad has been taking 2 antibiotics a day for it but it does not seem to be working. not sure what is going on. We praise God about the news that 50% of the igg cells are gone, this is wonderful news. Pray for strength for my dad and our family, its quite difficult to deal with. Very hard on us kids to see our dad in so much pain and suffering all the time. It makes us wonder why God would put us through something like this. But we know as Christians that everything is in God's hand and he has a plan and a reason for all this to happen. This situation has made our family grow so much closer, and I know at least for me, so much closer to God. I thank God for my family and friends who are there to support me and help me through this time. I couldn't ask for a more loving and caring family. I, we, are so blessed to have everyone who is so supportive to help us and lift us up through this time. Even when it seems like all hope is lost, and things cant get much worse, we just have to remember that the Lord is with us at all times. He is in charge. & no matter how bad we have it, somebody out there has it worse. So we are thankful and blessed for our lives and everyday that we have on this earth. Each day is a gift, not a given right. So cherish every day and make the most of what you've got. Love you all & thank you so much for the support and prayers.
-Monica.
Friday, June 12, 2009
Its Friday, I'm sick again for week number 3. The diarirea is back. Not sur why but will accept all christ wants me to go thru. Last night we celebrated Alina's 21 birthday. She is working in pasadena and at church. What a blessing she is. We enjoy her. The have found an apartment for 990 / month in monrovia near the office. They get married on 22of august. Jill is working to get everything done in for our side of the wedding. I have had a couple of good days at work and home. Energy was good because i was on the steroid. I have Jill's dad on vacation for 12 days starting yeserday. They are visiting relatives in he north. I took some xrays this week. Hopefully they will begin the process of getting my shoulder worked on. the color bone is chewed up half way done they bone now. so i have no support left in the right shoulder. I saw dr vakil this week and he thinks that the steroids have helped kill about 50% of the tumors. this is great news. I'm happy to get such a good report. Jill and i are happy to see progress. It still will take time toget into remisssioin if I do get into remissioin.
Prayer- keep getting better on the drugs. and blood sugar control
Wednesday, June 10, 2009
WEdsnesday june 10
Hi, Yesterday was a normal day. I was at UCLA for xrays. I worked a few hours before going to the doctors. The xrays were for a follow up from a couple of months ago. Spine and shoulder, and ribs. The collor bone was the one that has been bothering me the most. It seems the tumors have eaten up most of the right side of the collor bone up to the middle of the shoulder. The shoulder support has been poor and so it hurts more. I started taking a 12 hour pain pill and eliminated the every 4 hour pill. it makes it easier to keep pain under controll. My blood sugar has been better because i was not taking the steroid for the first part of the week. but the last to days my sugar has been up to 200 so i have been taking the insulin shots on tuesday and wednesday. i took about 30 ml on tuesday and should be about the same today. I just got over 2 weeks of flu and pneumonia. I was not feeling well those two weeks. missed some work. today i go to doctor Vakil for a follow. It seems i have an new tumor in my ribs. Hopefully its just a flare up of an old one. The kids from JR high at Church are coming to the river for a few days next week. I'm ready but my body may not be.
Tuesday, June 9, 2009
Hi everyone. This is Jill. Steve has been sick off and on the past week. It is very frustrating. He is ok for 2 - 3 days, can work @ 1/2 day and then he will get a fever, flu symptoms and just be so weak he can't even hardly walk around the house. Today and yesterday he is much better. He is also on the steroids so he has some energy. He went to work this morning but is coming home @ 10 so we can drive out to UCLA for some xrays that were ordered. We might know more about his progress after oncology visit tomorrow here in Glendora. Blood sugars are still a problem but we are attending a diabetes education class to learn more. No steroid days he usually doesn't have to take insulin.
Pray for his emotional health to keep looking up (also for the whole family). Our hope is in the Lord, the maker of heaven and earth. Some day this world will be restored to what God intended it to be :) In the meantime we go from strength to strength and our God will see us through. Thanks for praying and reading! Jill.
Tuesday, June 2, 2009
Monday June 1
I went to work today. It was has a hard day, I did a couple of measures and processed a few orders to keep things going. I have some more work to do today. I see doctor Burrows at 9:15. I was in the hospital andthis is just a routine follow up visit. Blood work is all over the place on the steroids. As high as 440 to 86 inthe mornings. Its hard to control. My cell has been acting up so i got a new phone yesterday. I switching to a new carrier but keeping the old number. 6264851364. Prayer request control the blood sugars.
Jason will be out of school in a couple of days. "What will he do"
Monday, June 1, 2009
Monday June 1
Hi Its Monday. I have been in the hospital on sunday with fever and Pneumonia. I was having fever on Wednesday night about 102.5. So I got a presription for amoxiccillin on friday. Friday and Saturday I tried working on Friday but was too sick for work. Saturday I was resting and trying to recouperate. Sunday I finally gave up and told Jill to take me to the hospital. It was just a short visit about 2.5 hours. The gave me stronger antibotics and sent me home. I worked 4 hours today and did okay. I was able to process several orders and do a couple of measures. I'm happy to be running around and getting better. Jason is getting older and having more time away from the house. he is ready to start driving. He wants to move to cars around in the driveway. Monica has been busy running around with friends. Kevin is getting ready for the wedding in August. he is getting an apartment in Monroia July 15th. I'm on the dexamethodone today. I have more energy but the diabetis is causing my blood sugars to to cracy. Last night it was 439. It took two doses to bring it down to 197. so prayer request is getting to know how to control the blood sugar with diet and exercise. I dont want to exercise but have to do more.
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